Could someone please remind me about how my summer has been? Days like today makes me draw blank about the stress, sadness, frustration and hope I’ve gone through for the past four months. Today was absolute wonderful. I realize we’re going to have more and more days like this as Eric progress, we’ll also have setbacks and more stressful and sad days. All that makes it worth fighting for if I can have more days like today. Our plan back in early spring was to have this summer dedicated to camping and BBQ, this was going to be our summer for relaxation and getting in shape, instead it became our worse nightmare with a slam dunk on the emergency brake and a 360 degree change in life. Today was wonderful because I had Eric in our world for the whole time I was with him. With that I mean, he didn’t drift off to his own world where his words and actions doesn’t make sense to us. He was focused, understood everything that was said and happened around him, and he participated in what was asked off him, and he asked questions. He heard me arguing with the nurse about his care and his medicine and I welcomed him into my world; all he could do what to shake his head; he knew what I did was right and he thanked me for being there for him. We had a very emotional morning; I wanted to share with him the support we have received from all of you. I named some high school friends, long distant family members, clients of Eric, friends, and names of people we don’t even know, I read some of your blog notes and emails. Eric couldn’t take it. The support you’re giving us is enormous and it was too much for him to take in; he cried and totally lost it, and so did I. Please keep on sending your blog notes, please send more, it’s good for him to know he’s not alone through this. He couldn’t take it today but one day he will, and knowing you’re out there will only make him fight more.
His PT and OT training today were awesome, he pushed himself and I could see in his eyes how he was fighting. It’s like he has his own personal trainer and he gets that part, we have had a personal trainer before. It’s harder to get him to speak. Eric has been called many things in his life, but “shy” and “silent” is new but that’s what his nurse called him today. Eric is half Scottish and half Italian, there’s nothing shy and silent about him, it’s more the opposite. Eric won’t talk because his voice is different, and he doesn’t like it. It’s frustrating for him, myself and everyone else because we can’t understand him. I keep on telling him to practice, it’s just like lifting weight…he needs to practice to get stronger and one day, it will all come back. I asked him to believe in that, and to not give up.